Zack Ponder speaks with Angelina Neglia, a dedicated advocate for children with disabilities, particularly her son Tyler, who has Kabuki syndrome. Angelina shares her personal journey, detailing the challenges faced in navigating medical systems, securing appropriate education, and advocating for funding and support services. She emphasizes the importance of being proactive, building relationships with specialists, and understanding the intricacies of special education and healthcare systems. The conversation also touches on community advocacy, environmental issues, and the need for better communication among agencies. Throughout, Angelina highlights the victories and achievements of her son, showcasing the potential for success despite the obstacles faced.
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